Supporting Patients Who Volunteer for Research
The key to any patient-centered research project is the patients who are willing to enroll in the study and provide their time and energy to take part in multiple clinical evaluations, interviews and tests. The Transforming Research And Clinical Knowledge of Traumatic Brain Injury (TRACK-TBI) study aims to enroll 3,000 such volunteer participants who will return to the clinic four to five times over the course of a year for the research team to collect blood draws, perform MRI scans, and record self-reported information. Often patients in the study have become unable to drive themselves to their appointments or require a loved one to accompany them due to the brain injury they sustained.
To help patients fulfill their desire to be a part of the study, and to enrich research through the important information we can learn from them, One Mind raises funds to provide patient stipends that cover transportation costs and help to offset time missed from work by the patient or their loved one. On average, patients receive $125 per visit, and 60-80% of those receiving a stipend complete the research protocol. Being able to retain patients with the use of stipends has accelerated the study and helps ensure that federal grant funds are used in the most cost-effective way possible. One Mind will continue to work to fill this critical funding gap for TRACK-TBI as well as AURORA, which aims to follow 5,000 volunteer participants who have experienced trauma and may be at risk for developing post-traumatic stress.