What is open science?

Open science is a global movement to make scientific research, results and data available, and accessible to everyone.


Why One Mind supports open science

One Mind believes “open notebook research” and more access to scientific data will:

  • Foster collaboration and innovation
  • Accelerate replication and validation of results
  • Allow increased data integration and power for statistical analysis
  • And, most importantly, accelerate the translation of basic research to clinical use so patients receive improved diagnostics and treatments.


What are One Mind’s open science principles?

To support Open Science for brain disease and injury, One Mind urges the international research community to adopt the following principles:

  1. Provide informed consents for collection of medical data obtained from patients, which should permit use of their de-identified (anonymous) data for research related to a broad range of conditions — consistent with protecting patient privacy.
  2. Use widely accepted common data elements and conform to the highest possible standards when clinical data is collected. This enables it to be used by the widest possible array of users, whether academic, medical, clinical or commercial.
  3. Make data available to the research community as soon as possible after study completion, with the goal of opening data access within six months whenever possible.
  4. Make data accessible to external researchers during the course of a study (subject to relevant data use agreements).
  5. Give data generators proper attribution & credit from those who use their data.
  6. Do not delay the publication of findings, as it may affect patient care.
  7. Intellectual property should not stand in the way of research, but be used to incentivize material participation.

In support of this, One Mind is playing a critical role in the development and management of DAQCORD (Data Access Quality & Curation for Observational Research Designs), that is working to develop a practical self-assessment and reporting method for clinical research studies. Learn more about DAQCORD at www.daqcord.org.